22q Informational Videos
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Webinar Summary: Megan will discuss common themes and behaviors of adults with 22q11.2 Deletion Syndrome and the impact these have on food, including but not limited to impulsivity and cravings. Megan will share specific ideas and recommendations on how to best manage these behaviors, with the primary goal of working towards a healthier lifestyle. This webinar will provide you with a general overview of what it means to have a healthy lifestyle, including food/beverages, activity and positive lifestyle behaviors.
Webinar Summary: Children with the 22q11.2 deletion often have difficulty acquiring the reading skills needed for school success and adult life. This webinar will present new research into possible causes of the reading challenges these students face, as well as provide insight into how to approach remediation. Dr. Kevin Antshel will discuss his recently published longitudinal study entitled, Predicting reading comprehension academic achievement in late adolescents with velo-cardio-facial (22q11.2 deletion) syndrome (VCFS): a longitudinal study. Donna Cutler-Landsman will present strategies for teachers and parents to help improve literary learning outcomes. A question and answer session was recorded at the end of the presentation.
This webinar addresses common signs and symptoms of anxiety disorders in children and adolescents with 22q11.2 deletion syndrome. Diagnostic criteria for anxiety disorders will be reviewed along with how anxiety can affect daily functioning for the child and his or her family. Treatment approaches such as cognitive behavioral therapy and medication will also be discussed
As students with the 22q11.2 deletion move through school, math often becomes increasingly difficult. This webinar will briefly review the main points that underlie the math challenges often found and discuss how to remediate or accommodate these deficits in higher level math classes. Additionally, we will discuss the implications of a math disability and its impact on transitioning into post secondary training and adult life. Emphasis will be on both training and the use of community and private resources. Time will be given for discussion and questions.
Module 3: Family Perspectives (Presented by Mary Mayo, parent) • Designed for pediatricians and educators wanting to better understand the challenges faced by families of individuals affected with 22q11DS. • Narrated by the mother of a young adult with this condition, review of current literature and interviews with parents provide a closer look into the effect of this diagnosis on the entire family. This series of videos was produced through a collaboration between The Dempster Family Foundation and The 22q11.2 Clinic at the Duke University Medical Center. These modules were created for professional CME/CEU credit requirements. CEU's are Continuing Education Credits which licensed professionals are required to maintain in order to keep their license current. Please let your medical professionals know they can now receive CME or CEU credits for viewing these video modules. Professional seeking CME's/CEU's should follow the link below to acquire credit. CUT & PASTE THIS LINK: http://continuingeducation.dcri.duke.edu/chromosome22q112
Module 2: Neurocognitive, Academic, and Social-Behavioral Characteristics of Individuals with 22q11 Deletion Syndrome Across the Life Span
Module 2: Neurocognitive, Academic, and Social-Behavioral Characteristics of Individuals with 22q11 Deletion Syndrome Across the Life Span (Dr. Stephen Hooper) • Designed for educators and other school personnel interested in learning more about learning, social and behavioral challenges faced by individuals with 22q11DS. • Also appropriate for pediatricians wanting to learn more about the educational challenges associated with this condition. Designed for pediatricians and other health care providers interested in learning more about diagnosis and management of individuals with 22q11DS • Also appropriate for educators wanting to learn more about the medical aspects of this condition. This series of videos was produced through a collaboration between The Dempster Family Foundation and The 22q11.2 Clinic at the Duke University Medical Center. These modules were created for professional CME/CEU credit requirements. CEU's are Continuing Education Credits which licensed professionals are required to maintain in order to keep their license current. Please let your medical professionals know they can now receive CME or CEU credits for viewing these video modules. Professional seeking CME's/CEU's should follow the link below to acquire credit. CUT & PASTE THIS LINK: http://continuingeducation.dcri.duke.edu/chromosome22q112
Math disability has been well documented in cognitive studies on 22q11 population. Difficulties with understanding the fundamental aspects of mathematics plague these students throughout childhood and in many cases into adulthood. This webinar will explore the research that has been done to define the underpinnings of math challenges for this population and apply that knowledge to the more general understanding of how to approach math with special needs pre-school and elementary students. Emphasis will be on the topics of number sense and visual spatial deficits and how these impact early learning of math concepts. After a PowerPoint presentation, there will be a question and answer session.
Presented by: Dr. Richard Kirschner, MD., Chief of Plastic and Reconstructive Surgery Speech Scientist, Dr. Adriane Bayliss, PhD, CCC-SLP Co-directors of the The 22q Center at Nationwide Children's Hospital Description: Children with 22q deletion syndrome are at high risk for velopharyngeal dysfunction (VPD) and hypernasal speech. This webinar will include discussion of what causes VPD in children with 22q, how we diagnose it, and the treatment options for improving speech. We will discuss the timing and types of surgical procedures available, as well as the role of speech therapy in the diagnosis and treatment process. Special pre-surgery and post-surgery needs of children with 22q undergoing VPD surgery will also be reviewed
"Understanding Individual Education Plans" Navigating through the educational maze can be a daunting task. This webinar is designed to provide a road map to guide parents and professionals through the IEP process. It will cover issues of eligibility, evaluations, IEP components, goal writing, school responsibilities, parent rights and resolution of differences. The goal will be to provide parents with better tools to understand the IDEA law and how to approach negotiations with schools in a positive manner.
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