Our Story

You are here

“In every conceivable manner, the family is a link to our past, bridge to our future.” -Alex Haley

The above quote perfectly encapsulates where we come from and what we hope to be for the 22q community. Our link to the past is our connection to The Dempster Family Foundation. Prior to the creation of our organization, we, like many of you, received support, guidance and a sense of togetherness from DFF. Their ideals of creating a community of those with shared experiences and raising awareness to better the lives of everyone affected by the disorder are something that we intend to continue as we grow. We are going to maintain and build upon many of the programs that many of us within the 22q community have come to rely on such as the 22q Education Station, the 22q Mystery Tour, and more. Our bridge to the future is that we intend to create new ways to connect members of our community, as well as work to make sure 22q11.2 Deletion Syndrome becomes a household name. It was important to us to keep the word "Family" in the name of the organization because we hope to become a part of yours'. This is your organization. Therefore, we welcome feedback, input and ideas so that we can be the most effective for the 22q Family. We appreciate the opportunity to serve you all and to help take the mystery out of 22q!

Latest News

Upcoming Event

Spread the Word