Submitted by Samantha Block (9/27/2013)
I think most parents would agree that raising a child is the hardest thing they’ve ever done. The scariest thing they’ve ever done. When a person becomes a parent, whether through biology or adoption, they are agreeing to put the needs of a helpless little human before their own.

Most parents understand that. They understand it to mean middle of the night feedings, wiping poop off butts (and legs, and arms, and mom’s legs and arms!), giving up sleep, living in yoga pants and pony tails.

A funny thing happened on the way to Cincinnati, Ohio for the 22q-VCFS Family Conference;  After a 10 hour day of driving the 22Q Mystery Tour Bus through 5 states, we pulled into the Homerville, OH KOA campground.  As usual, while we hooked up the water, power, and got situated campers started stopping by to ask us "Hey!  What is the 22Q Mystery Tour?"  We handed out info and explained a bit about this syndrome which no one seems to know about and continued plu