A funny thing happened on the way to Cincinnati, Ohio for the 22q-VCFS Family Conference; After a 10 hour day of driving the 22Q Mystery Tour Bus through 5 states, we pulled into the Homerville, OH KOA campground. As usual, while we hooked up the water, power, and got situated campers started stopping by to ask us "Hey! What is the 22Q Mystery Tour?" We handed out info and explained a bit about this syndrome which no one seems to know about and continued plu
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Our 4th Annual Virtual Run/Walk/Ride for 22q is happening this June and registration will be opening up soon! Want to be better about raising awareness but don't know where to start? Participating in this virtual event will help you get active,...