A funny thing happened on the way to Cincinnati, Ohio for the 22q-VCFS Family Conference; After a 10 hour day of driving the 22Q Mystery Tour Bus through 5 states, we pulled into the Homerville, OH KOA campground. As usual, while we hooked up the water, power, and got situated campers started stopping by to ask us "Hey! What is the 22Q Mystery Tour?" We handed out info and explained a bit about this syndrome which no one seems to know about and continued plu
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
We invite you to attend a series of financial webinars led by CaringTide. CaringTide are experts in disability planning and are here to help create a lifecare plan for your loved one with 22q. Each month they will feature a new topic. Please save-...