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Audio Recordings -VCFS Education Foundation Dublin Meeting
August 6, 2013
Just and FYI...The VCFS Edcation Foundation has released their recent Dublin Ireland Meeting Recordings! These can be purchased directly from The VCFSEF at www.vcfsef.org
A Funny Thing Happened On The Way To Cincinnati
August 2, 2013
A funny thing happened on the way to Cincinnati, Ohio for the 22q-VCFS Family Conference; After a 10 hour day of driving the 22Q Mystery Tour Bus through 5 states, we pulled into the Homerville, OH KOA campground. As usual, while we hooked up the water, power, and got situated campers started...
Dempster Foundation Founder Recalls Milestone Victory -Boston Herald Online
July 30, 2013
See The Boston Herald Online Article HEREAlmost exactly 15 years ago to the day, Dempster toed the rubber against the Red Sox while in pursuit of one of the most important victories of his career — his first.He’d get it, too, outpitching Derek Lowe in the Marlins’ 5-1 victory at Pro Player Stadium...
Let's get ready to RUUUUMBLE!
July 22, 2013
Let's get ready to RUUUUMBLE!Help us beat david Robertson by clicking HEREWell, I have never been strong, fast, coordinated or for that matter in shape. This has prevented me for much of my life from competing. But I love too! I want to win this one! I want to win it for 22q, for VCFS, for...
Driving the 22Q Mystery Bus
July 18, 2013
Well, it's been five days since we left Florida, headed for Dragonfly Forest Summer Camp for children diagnosed with 22q Deletion Syndrome. What an incredible five days it's been! We've driven awareness and talked to people in nine states, we didn't make a single stop without getting asked "Hey...
22q (aka DiGeorge & VCFS) is just NOT that rare!
June 17, 2013
Notes From The Executive Director: June 17th, 2013I'm sick and needed to run to the pharmacy. So, I thought... Ill take the 22Q Mystery Bus, it's only a 10 minute drive to Walgreens. As I was pulling out of the Walgreens parking lot, a lady frantically waved me down and asked... "Is this 22q as is...
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