The 22q11.2 Deletion Syndrome Clinic is a new program, now offered through the CDRC Craniofacial Program.
To schedule an appointment please contact Rhiannon Orizaga or Tanesha Harrell at (503) 494-8088
Rhiannon Orizaga orizaga@ohsu.edu
P.O. Box 1344
Aptos, CA 95003
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The 22q11.2 Deletion Syndrome Clinic is a new program, now offered through the CDRC Craniofacial Program.
To schedule an appointment please contact Rhiannon Orizaga or Tanesha Harrell at (503) 494-8088
Rhiannon Orizaga orizaga@ohsu.edu
The Seattle Children’s 22q Clinic brings together many types of healthcare professionals to care for children who are missing a small piece of 22q11.2, a region on chromosome 22.
When your child comes to the 22q Clinic, a core group of clinic team members assesses your child. They create a special plan and involve other team members based on your child’s specific needs. Your team may include professionals from our Craniofacial Center and other areas of healthcare such as Audiology, Cardiology, Endocrinology, Gastroenterology and Hepatology, Genetic Counseling, Immunology, Medical Genetics, Neurology, Neurodevelopmental, Neuropsychology, Otolaryngology, Psychiatry and Psychology, Sleep Medicine, Speech and Language Pathology and Social Work.
The members of your team work closely to coordinate your child’s care whenever possible. Our goals are to diagnose and treat each problem that affects your child and to understand the overall picture of your child’s health and manage their care. We also work to connect your family with helpful resources
To schedule an appointment. Call the Craniofacial Center at (206)987-2208
The 22q Multidisciplinary Clinic at Johns Hopkins All Children’s Hospital seeks to provide holistic and comprehensive care to infants, children and young adults living with 22q Deletion Syndrome. Our goal is for all of our 22q patients to live their best lives and receive the best care possible throughout their childhood and adolescence. We utilize a team-based approach so that during a clinic visit, patients are able to be evaluated by providers from pediatrics, plastic surgery, speech pathology, psychology, genetics, cardiology, and endocrinology, with referrals placed to additional sub-specialists as needed. This allows for the care of our 22q patients to be optimized and ensures no aspect of their care will be missed or forgotten. Our team providers all have extensive experience in the treatment and management of patients with 22q and are faculty on staff at the world-class Johns Hopkins School of Medicine. Our hospital is the #1 children’s hospital in the Tampa Bay region and a center of excellence for pediatric care in the entire southeast. We look forward to meeting your family and child at our next 22q clinic.
To set up an appointment, contact Taryl at 727-767-2930 or via email at ACHCleftCraniofacialTeam@jhmi.edu
Visit our website below for more information about our 22q clinic and team providers.
The Dalglish Family Clinic is the first of its kind in the world, specializing in adults with 22q11.2 Deletion Syndrome. The clinic provides patients with are from healthcare experts from many specialties. It is devoted to helping adults with 22q11.2 Deletion Syndrome and their families.
Our Vision
We want to be a world leader in 22q11.2 Deletion Syndrome, providing:
Specialized, patient-centred care to adults with 22q11.2 Deletion Syndrome and their families
Excellence in education for patients, families, trainees and health care providers
World class research
The Dalglish Family Clinic
Toronto General Hospital
8NU (Norman Urquhart), Room 802
200 Elizabeth Street
Toronto, Ontario, M5G 2C4
Canada
Healthcare professionals from the UC Davis Departments of Pediatrics, Psychiatry and Behavioral Sciences provide services. We collaborate with the MIND Institute research program in chromosome 22q11.2 deletion (VCFS/DiGeorge) syndrome to inform our clinical work. A Developmental Pediatrician, Child Psychiatrist and a Licensed Clinical Psychologist comprise the clinic’s professional staff. Clinical assessments are currently available on the 2nd Wednesday and 4th Monday of the month.
The following services are offered to children ages 14 and younger:
For more information: (916) 703-0409 or hs-22q@ucdavis.edu
Clinic Location
UC Davis Mind Institute2825 50th StreetSacramento, CA 95817Families who would like their children seen in our clinic should:
The primary care physician (PCP) MUST:
Parents may then contact June LaMarr, New Patient Referral Coordinator, at 916-703-0440 to initiate the referral process.