List of 22q Clinics

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Seattle, WA ~22q Clinic at Seattle Children’s Hospital

The Seattle Children’s 22q Clinic brings together many types of healthcare professionals to care for children who are missing a small piece of 22q11.2, a region on chromosome 22.

When your child comes to the 22q Clinic, a core group of clinic team members assesses your child. They create a special plan and involve other team members based on your child’s specific needs. Your team may include professionals from our Craniofacial Center and other areas of healthcare such as Audiology, Cardiology, Endocrinology, Gastroenterology and Hepatology, Genetic Counseling, Immunology, Medical Genetics, Neurology, Neurodevelopmental, Neuropsychology, Otolaryngology, Psychiatry and Psychology, Sleep Medicine, Speech and Language Pathology and Social Work.

The members of your team work closely to coordinate your child’s care whenever possible. Our goals are to diagnose and treat each problem that affects your child and to understand the overall picture of your child’s health and manage their care. We also work to connect your family with helpful resources

Additional Information:

To schedule an appointment. Call the Craniofacial Center at (206)987-2208

View Clinic Website »
The 22q Multidisciplinary Clinic at Johns Hopkins All Children’s Hospital

The 22q Multidisciplinary Clinic at Johns Hopkins All Children’s Hospital seeks to provide holistic and comprehensive care to infants, children and young adults living with 22q Deletion Syndrome. Our goal is for all of our 22q patients to live their best lives and receive the best care possible throughout their childhood and adolescence. We utilize a team-based approach so that during a clinic visit, patients are able to be evaluated by providers from pediatrics, plastic surgery, speech pathology, psychology, genetics, cardiology, and endocrinology, with referrals placed to additional sub-specialists as needed. This allows for the care of our 22q patients to be optimized and ensures no aspect of their care will be missed or forgotten. Our team providers all have extensive experience in the treatment and management of patients with 22q and are faculty on staff at the world-class Johns Hopkins School of Medicine. Our hospital is the #1 children’s hospital in the Tampa Bay region and a center of excellence for pediatric care in the entire southeast. We look forward to meeting your family and child at our next 22q clinic.

Additional Information:

To set up an appointment, contact Taryl at 727-767-2930 or via email at ACHCleftCraniofacialTeam@jhmi.edu

Visit our website below for more information about our 22q clinic and team providers.

 

View Clinic Website »
Toronto, ON ~The Dalglish Family 22q Clinic

 

The Dalglish Family Clinic is the first of its kind in the world, specializing in adults with 22q11.2 Deletion Syndrome.  The clinic provides patients with are from healthcare experts from many specialties. It is devoted to helping adults with 22q11.2 Deletion Syndrome and their families.

Our Vision

We want to be a world leader in 22q11.2 Deletion Syndrome, providing:

  • Specialized, patient-centred care to adults with 22q11.2 Deletion Syndrome and their families

  • Excellence in education for patients, families, trainees and health care providers

  • World class research

Email: 22q@uhn.ca

Phone: (416) 340‒5145

Fax: (416) 340‒5004

Hours: Monday to Friday 9AM to 5PM

 

Additional Information:

The Dalglish Family Clinic
Toronto General Hospital
8NU (Norman Urquhart), Room 802
200 Elizabeth Street
Toronto, Ontario, M5G 2C4
Canada

View Clinic Website »
UC Davis Mind Institute (Sacramento, CA) - 22q Healthy Minds Clinic

Healthcare professionals from the UC Davis Departments of Pediatrics, Psychiatry and Behavioral Sciences provide services. We collaborate with the MIND Institute research program in chromosome 22q11.2 deletion (VCFS/DiGeorge) syndrome to inform our clinical work. A Developmental Pediatrician, Child Psychiatrist and a Licensed Clinical Psychologist comprise the clinic’s professional staff.  Clinical assessments are currently available on the 2nd Wednesday and 4th Monday of the month.

The following services are offered to children ages 14 and younger:

  • Developmental or Neuropsychological Examinations (age 14 or younger)
  • Medical Consultation
  • Consultation/Management of Medications
Additional Information:

For more information:  (916) 703-0409 or hs-22q@ucdavis.edu

Clinic Location

UC Davis Mind Institute
2825 50th Street
Sacramento, CA 95817

Families who would like their children seen in our clinic should:

  •  Directly contact their insurance company and establish that medical and behavioral health benefits are available and authorized. 

  •  Make an appointment with their child’s primary care physician to discuss their concerns and reasons why they want their child examined at our clinic.

The primary care physician (PCP) MUST:

  •  Provide a written report of the child’s medical history, physical examination, and reason for referral.

  •  Complete the MIND Institute Clinic Referral (PDF) » sheet (fax to 916-703-0350), and

  •  Call the UC Davis Physician Referral Center at 800-482-3284. 

Parents may then contact June LaMarr, New Patient Referral Coordinator, at 916-703-0440 to initiate the referral process.


 

View Clinic Website »
UCLA 22q Clinic

The UCLA 22q Clinic is a multidisciplinary specialty clinic created to serve children and adults diagnosed with 22q11.2 deletion and duplication syndromes (22q11.2 deletion syndrome is also called DiGeorge syndrome, VCFS, or velocardiofacial syndrome). Our mission is to provide comprehensive medical management specific to 22q11.2 deletion and duplication syndromes through a collaborative team approach. We accept patients from infancy to adulthood. The 22q clinic is offered on the second Wednesday of every month at 200 UCLA Medical Plaza, Suite 265, Los Angeles, CA 90095.

The UCLA 22q Clinic includes a geneticist, genetic counselor, immunologist, cardiologist, and endocrinologist with consultations from neuropsychologists. Consultations in the UCLA Craniofacial clinic may be scheduled on the same day and take place in the same suite.

 

Our Team:

Sulagna Saitta, MD, PhD - Pediatric Genetics

Marina Dutra-Clarke, MS, CGC - Genetic Counselor

Caroline Kuo, MD - Pediatric Allergy & Immunology

Greg Perens, MD - Pediatric Cardiology

Apisadaporn Thambundit, MD - Pediatric Endocrinology

Contact Us: UCLA Department of Pediatrics, Division of Genetics 300 UCLA Medical Plaza Suite 3100 Los Angeles, CA 90095 (310) 206-6581(Link opens phone app) Tel (310) 206-8616 Fax

Additional Information:

For an appointment, please call: UCLA Pediatric Genetics (310)206-6581

Contact Us:

UCLA Department of Pediatrics, Division of Genetics

300 UCLA Medical Plaza Suite 3100

Los Angeles, CA 90095

Ph: 310-206-6581/ Fax: 310-206-8616

 

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Upcoming Event

22q Moms Retreat 2025- Chicago
Choose Your Retreat!We are thrilled to announce that we have our next 22q Moms Retreat on the horizon.  We invite you to attend our next retreat in the MIDWEST: CHICAGO, IL May 16-18, 2025Registration opening in DecemberMore details coming soon. ...
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