JOEY – 2 YEARS OLD
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Joey was born in the summer of 2011. We didn't know there were complications until a few hours after his birth. He was soon diagnosed with Tetralogy of Fallot and a few weeks later with 22q11.2 deletion syndrome. Joey needed open heart surgery at 2 months old. After surgery, we found out that Joey has a blood disorder where his platelets are too large and that he has just one functioning kidney.
At two years old, Joey is the typical toddler: learning how to yell, hug, throw and be independent! He loves to dance, play on his 'laptop' and spend time outdoors. He
is considered non-verbal because he says no words, but he can (and does) make a lot of noise and is learning some sign language at home and in his therapies.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
Special Education Advocacy Training: Virtual
Do you have a child or student with 22q11.2 deletion syndrome? Do you want to gain insight into how these students learn best and identify stregnths and weaknesses that come with this diagnosis? We invite you to become an expert with us! Starting...