JAXSON – 3 MONTHS OLD
Retrun to 22q StoriesYou are here
Jaxson was diagnosed with a CHD at two days old, he had open heart surgery at six days old to repair his interrupted aortic arch and VSD. We later found out that he also was missing his thymus, about a week later the results came back that he had 22q11. When he was able to start eating after surgery he was aspirating and we discovered his vocal cords were paralyzed. He also has larygomalicia. He had to be fed through an NG tube until he was about two months old. He can now eat from a bottle with special feeding instructions but he is doing great. He is a very happy baby. We are so fortunate to have such a strong little boy.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
22q Moms Retreat 2025- Chicago
Choose Your Retreat!We are thrilled to announce that we have our next 22q Moms Retreat on the horizon. We invite you to attend our next retreat in the MIDWEST: CHICAGO, IL May 16-18, 2025Registration opening in DecemberMore details coming soon. ...