22q (aka DiGeorge & VCFS) is just NOT that rare!
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Notes From The Executive Director: June 17th, 2013
I'm sick and needed to run to the pharmacy. So, I thought... Ill take the 22Q Mystery Bus, it's only a 10 minute drive to Walgreens. As I was pulling out of the Walgreens parking lot, a lady frantically waved me down and asked... "Is this 22q as is chromosome 22?" She then introduced me to her 14 year old daughter. Kaylie (not sure of spelling) who was diagnosed with DiGeorge Syndrome (aka 22q)!
Kaylie has this A-mazing curly black hair! *jealous* and she was so friendly and sweet. She was headed to the gym with her mom when we parted ways.
I love it when a plan comes together! I'm feeling better already!
I'm sick and needed to run to the pharmacy. So, I thought... Ill take the 22Q Mystery Bus, it's only a 10 minute drive to Walgreens. As I was pulling out of the Walgreens parking lot, a lady frantically waved me down and asked... "Is this 22q as is chromosome 22?" She then introduced me to her 14 year old daughter. Kaylie (not sure of spelling) who was diagnosed with DiGeorge Syndrome (aka 22q)!
Kaylie has this A-mazing curly black hair! *jealous* and she was so friendly and sweet. She was headed to the gym with her mom when we parted ways.
I love it when a plan comes together! I'm feeling better already!