EMMA GRACE - 6 YEARS OLD
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This is Emma Grace, she was diagnosed with 22q March in 2011 when she was almost 5 years old. Her father and half brother also have 22q. She is now almost 7 and has had nine surgeries. She has a double aortic arch with vascular rings. She has been recently diagnosed with ADD. She is a very happy little girl. She loves to draw, color and build things with her Legos. She has been taking dance since she was 3 years old and loves it. She has tried soccer twice but still loves her dance more. She loves school and is excited to start 2nd grade in the fall.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
Special Education Advocacy Training: Virtual
Do you have a child or student with 22q11.2 deletion syndrome? Do you want to gain insight into how these students learn best and identify stregnths and weaknesses that come with this diagnosis? We invite you to become an expert with us! Starting...