AVA
Retrun to 22q StoriesYou are here
Ava was diagnosed with 22q two weeks after birth while still in the hospital recovering from her first open heart surgery. During her first two years of life, we had the calcium issues, keeping it regulated seemed like mission impossible! Ava was diagnosed as "failure to thrive" at about a month of age due to poor eating/weight gain, along with a list that reads like a novel of setbacks and complications. Today, Ava is five, going on six in May, in Kindergarten and thriving! She is in ballet and tap classes, loves playing baseball with her brother, would live outside if you let her, and wants to play soccer this fall. We love our 22 cutie!
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
22q Family Foundation & UC Davis MIND Institute: 22q Webinar Series
For 2025 we are thrilled to partner with the UC Davis MIND Institute providing you a 22q Webinar Series. This series will be broadcasted LIVE on both of our Facebook channels. Hear from experts in the field and consultants from The 22q Family...