Emma & Jenna
Retrun to 22q StoriesYou are here
These are my lovely twins. They were 2 years old when I first saw a genetic doctor at upstate hospital [in New York]. He suggested we get a genetic test because my girls were behind in speech and walking. When we finally got the results, I learned about 22q and started to spread awareness about it. Both my girls just love to be kind and help others. They get ST, PT & OT. I'm very proud of how far they have come so far.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
Special Education Advocacy Training: Virtual
Do you have a child or student with 22q11.2 deletion syndrome? Do you want to gain insight into how these students learn best and identify stregnths and weaknesses that come with this diagnosis? We invite you to become an expert with us! Starting...