SAXON - 18 YEARS OLD
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Saxon was born with TOF, we were told he wasn't going to live. We had an option of surgery but he was only given a five percent chance of making it through. He is now 18 years old. During his first surgery at two weeks old, his surgeon found that Saxon had no thymus, so testing was done and we were told he had DiGeorge. He is doing great and is full of love!
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
4th Annual Virtual 2.2 for 22q Run/Walk/Ride
Our 4th Annual Virtual Run/Walk/Ride for 22q is happening this June and registration will be opening up soon! Want to be better about raising awareness but don't know where to start? Participating in this virtual event will help you get active,...