SAXON - 18 YEARS OLD
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Saxon was born with TOF, we were told he wasn't going to live. We had an option of surgery but he was only given a five percent chance of making it through. He is now 18 years old. During his first surgery at two weeks old, his surgeon found that Saxon had no thymus, so testing was done and we were told he had DiGeorge. He is doing great and is full of love!
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Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
Special Education Advocacy Training: Virtual
Do you have a child or student with 22q11.2 deletion syndrome? Do you want to gain insight into how these students learn best and identify stregnths and weaknesses that come with this diagnosis? We invite you to become an expert with us! Starting...