SAXON - 18 YEARS OLD
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Saxon was born with TOF, we were told he wasn't going to live. We had an option of surgery but he was only given a five percent chance of making it through. He is now 18 years old. During his first surgery at two weeks old, his surgeon found that Saxon had no thymus, so testing was done and we were told he had DiGeorge. He is doing great and is full of love!
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
3rd Annual Run 2.2 for 22q (Virtual Run, Walk, Ride)
Save-the-Date: May 11-19th, 2024Get active-Raise Awareness-Make a DifferenceOur 3rd Annual Virtual Run 2.2 for 22q will kick off on Saturday, May 11 wherever you like to get active. Whether you prefer to run, walk, or ride, this event is an...