OLIVIA
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We found out about Olivia’s deletion through amniocentesis. She is one of the cases that is not hereditary, it was just a genetic anomaly. So far the main issues associated with her deletion are TOF with APVS. Olivia had her repair at 2 weeks old, on Valentines day of this year, but will still need surgeries as her replacement valves start to deteriorate. Her repair included patching of a VSD and a second small hole, a temp valave made of bovine tissue, and cinching down of 2 of her arteries. During her recovery she gave us a scare, she crashed, but they got her back and she did amazing after that. Everyday is a blessing with her, she recently discovered she has hands and that they apparently are very tasty.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
4th Annual Virtual 2.2 for 22q Run/Walk/Ride
Our 4th Annual Virtual Run/Walk/Ride for 22q is happening this June and registration will be opening up soon! Want to be better about raising awareness but don't know where to start? Participating in this virtual event will help you get active,...