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We found out about Olivia’s deletion through amniocentesis. She is one of the cases that is not hereditary, it was just a genetic anomaly. So far the main issues associated with her deletion are TOF with APVS. Olivia had her repair at 2 weeks old, on Valentines day of this year, but will still need surgeries as her replacement valves start to deteriorate. Her repair included patching of a VSD and a second small hole, a temp valave made of bovine tissue, and cinching down of 2 of her arteries. During her recovery she gave us a scare, she crashed, but they got her back and she did amazing after that. Everyday is a blessing with her, she recently discovered she has hands and that they apparently are very tasty.

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