MORGANRetrun to 22q Stories
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Morgan was born full term in October 2006. Just shortly after birth, one of the nurses noticed her turning blue and choking on her feedings. She went through several tests and was sent home to us after 5 days in the hospital. We were told she just had severe reflux. Each day was a struggle trying to feed her. The formula would come out of her nose almost every time. Finally we switched pediatricians when she was about 5 months old. He watched us feed her and sent us to the hospital imediately. We found out she was aspirating and was NG tube fed until she was 1. She had a few seizures when she was 7/8 months old and was put on medicine for that. She also has an abarent right subclavian artery, but nothing needed to be done with it. It wasn’t until she was 7 months old that we actually had a diagnosis for her. A doctor at the feeding clinic she was going to suggested the FISH test. Now at age 3, she is off all of her medicines and doing wonderful! She is in preschool and receives speech therapy, OT and PT. She also goes to CHOP at least once a year for multiple visits. She is the best girl in the world and we are so lucky to have her!