MAKENNAHRetrun to 22q Stories
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MaKennah was born May 2, 2008 at 8:52pm. Shortly after birth she was given and clean bill of health and we were released 2 days later. Everyday she had bright purple feet and the doctors said that they will eventually turn pink, but that never happen. On May 21, 2008 at 9am I took her back to the Clinic because she stopped eating and was taking maybe an ounce every 6 hours, that’s when our life took and turn for the worse. After being transferred to the ER and waiting there for about 4 hours, she was transferred to Gunderson Lutheran Hospital In LaCrosse WI. Thats when we found out she had heart defects, which were an Interrupted Aortic Arch, VSD, ASD, PDA, and Aortic Valve Stenosis. After her bad heart was found she needed to be transferred to Mayo Clinic In Rochester MN. She spent a week in the PICU before undergoing heart Surgery and in that time she was diagnosed with DiGeorge Syndrome because of her facial features, Calcium deficiency and her immune deficiency. MaKennah had her OHS on May 27, 2008. Thinking the worst was behind us, I was happy, until her feeding issues, seizures and breathing issues started happening. She has had a total of 13 operations including heart, stomach, and her airway. Within the next few weeks she will be going back in the the OR to have her submucus cleft palate repaired to help stop her nasal regurgitation.