MAKENNA
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My daughter was born August 7, 2010 I just found out she has DiGeorge Syndrome. She doesnt seem to have much of the symptoms. She sleeps alot, she might have a narrowing in her trachea which causes her to wheeze alittle, and she has low set ears. She has yet to have all her test done to see if she has any internal problems. I don”t know anything really about this syndrome but what I do know scares the crap out of me!
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Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
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Free Virtual Webinar: Expert Strategies for Securing Your Loved One's Future
Do you often worry about your loved one with 22q and who/what/how they will be best supported when you are no longer around to care for them? 22q Family is partnering with CaringTide for a free educational webinar.Sharing helpful resources and tools...