LUKERetrun to 22q Stories
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Luke was born on December 3, 2008, a healthy, head full of dark hair, weighing 6lbs. 12 oz. and 21 inches long. When Luke was just 12 days old he was diagnosed with Interrupted Aortic Arch, VSD, narrow arch which was not completed, along with 22Q. All of which we knew nothing about during my pregnancy. HIs first surgery was 17 hours and was completed successfully. Luke had difficulty with the suck, breath, swallow. So a G-tube was placed. He suffered a Cardiac arrest just days later. We ended up at Boston Children’s Hospital where a stent was placed in his Left Main Coronary. The surgery was again a success. We continued to follow up in Boston for monthly checkups. On Sept. 14th, 2009 Luke was listed for a heart transplant. We received the call on Oct. 31st, 2009 that Luke would be getting a new heart on Halloween.
It has been three years since transplant and Luke continues to thrive and develop. He is our miracle child. We have another son, Drew who is two. Luke amazes us everyday with his determination and strength to complete everyday tasks. He loves being outdoors, playing with his trains and animals. Luke has a long list of doctors and therapist, but takes it all with the best attitude. He is a fighter tha'ts for sure. Duke is our main provider of care, along with therapist whom we see at our local elementary school. He has made great progress over the past three years and we look for many more milestones in the future.