JOEY – 2 YEARS OLD
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Joey was born in the summer of 2011. We didn't know there were complications until a few hours after his birth. He was soon diagnosed with Tetralogy of Fallot and a few weeks later with 22q11.2 deletion syndrome. Joey needed open heart surgery at 2 months old. After surgery, we found out that Joey has a blood disorder where his platelets are too large and that he has just one functioning kidney.
At two years old, Joey is the typical toddler: learning how to yell, hug, throw and be independent! He loves to dance, play on his 'laptop' and spend time outdoors. He
is considered non-verbal because he says no words, but he can (and does) make a lot of noise and is learning some sign language at home and in his therapies.
Latest News
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Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
A Healthy You & 22q Conference at Nationwide Children's Hospital
Saturday, September 21, 20248am-4:30pmNationwide Children's Hospital presents: A Healthy You and 22q Conference This is an event you won't want to miss!This event is hosted every two years at Nationwide Childrens Hospital to bring together families...