JAXSON - 1 year old
Retrun to 22q StoriesYou are here
Jaxson was diagnosed shortly after his first open heart surgery at six days old. They discovered he did not have a thymus and later genetic testing confirmed he had 22q11.2 deletion syndrome. He has had two open heart surgeries so far.
You would never know it by meeting him what he has gone through. He always has a smile on his face. He loves to dance and read books. He is our superhero.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
22q Parent & Caregiver Education Day at Seattle Children's Hospital
Calling all families in the Seattle and surrounding area to attend an upcoming education day organized for parents and caregivers in our 22q community.We hope to help support and promote this event that is being organized by the team at Seattle...