JAXSON - 1 year old
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Jaxson was diagnosed shortly after his first open heart surgery at six days old. They discovered he did not have a thymus and later genetic testing confirmed he had 22q11.2 deletion syndrome. He has had two open heart surgeries so far.
You would never know it by meeting him what he has gone through. He always has a smile on his face. He loves to dance and read books. He is our superhero.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
A Healthy You & 22q Conference at Nationwide Children's Hospital
Saturday, September 21, 20248am-4:30pmNationwide Children's Hospital presents: A Healthy You and 22q Conference This is an event you won't want to miss!This event is hosted every two years at Nationwide Childrens Hospital to bring together families...