JAXSON - 1 year old
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Jaxson was diagnosed shortly after his first open heart surgery at six days old. They discovered he did not have a thymus and later genetic testing confirmed he had 22q11.2 deletion syndrome. He has had two open heart surgeries so far.
You would never know it by meeting him what he has gone through. He always has a smile on his face. He loves to dance and read books. He is our superhero.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
CaringTide: Series of Free Financial Webinars
We invite you to attend a series of financial webinars led by CaringTide. CaringTide are experts in disability planning and are here to help create a lifecare plan for your loved one with 22q. Each month they will feature a new topic. Please save-...