JAXSON - 1 year old
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Jaxson was diagnosed shortly after his first open heart surgery at six days old. They discovered he did not have a thymus and later genetic testing confirmed he had 22q11.2 deletion syndrome. He has had two open heart surgeries so far.
You would never know it by meeting him what he has gone through. He always has a smile on his face. He loves to dance and read books. He is our superhero.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
Special Education Advocacy Training: Virtual
Do you have a child or student with 22q11.2 deletion syndrome? Do you want to gain insight into how these students learn best and identify stregnths and weaknesses that come with this diagnosis? We invite you to become an expert with us! Starting...