JAXSON – 3 MONTHS OLD
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Jaxson was diagnosed with a CHD at two days old, he had open heart surgery at six days old to repair his interrupted aortic arch and VSD. We later found out that he also was missing his thymus, about a week later the results came back that he had 22q11. When he was able to start eating after surgery he was aspirating and we discovered his vocal cords were paralyzed. He also has larygomalicia. He had to be fed through an NG tube until he was about two months old. He can now eat from a bottle with special feeding instructions but he is doing great. He is a very happy baby. We are so fortunate to have such a strong little boy.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
4th Annual Virtual 2.2 for 22q Run/Walk/Ride
Our 4th Annual Virtual Run/Walk/Ride for 22q is happening this June and registration will be opening up soon! Want to be better about raising awareness but don't know where to start? Participating in this virtual event will help you get active,...