JAXSON – 3 MONTHS OLD
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Jaxson was diagnosed with a CHD at two days old, he had open heart surgery at six days old to repair his interrupted aortic arch and VSD. We later found out that he also was missing his thymus, about a week later the results came back that he had 22q11. When he was able to start eating after surgery he was aspirating and we discovered his vocal cords were paralyzed. He also has larygomalicia. He had to be fed through an NG tube until he was about two months old. He can now eat from a bottle with special feeding instructions but he is doing great. He is a very happy baby. We are so fortunate to have such a strong little boy.
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A Healthy You & 22q Conference at Nationwide Children's Hospital
Saturday, September 21, 20248am-4:30pmNationwide Children's Hospital presents: A Healthy You and 22q Conference This is an event you won't want to miss!This event is hosted every two years at Nationwide Childrens Hospital to bring together families...