JACK RYAN
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Jack was diagnosed at Age 2 following VSD repair surgery at CHOP. He is now a healthy, happy, very active 11 year old in middle school. Jack’s biggest challenge has been his behaviors in school. After constant struggles with our school district, I think they finally get it. I had Elwyn Institute Genetics Dept. come to Jack’s school for an in-service on Q22 and I saw the lightbulbs going off in everyone’s heads. They finally believe that Jack has no control of his behaviors and needs con stant sensory releases. With this revelation, the school is finally a happy place for Jack.
Latest News
22Quarterly- March 2022 Volume 2 Issue 1
Check-out the recent issue of 22Quarterly- A newsletter about 22q11.2 Deletion Syndrome.Ana Alves Francisco, cognitive neuroscientist and science communicator dives into three new topics and how they affect our 22q community.In this newsletter she...
Upcoming Event
22q at the Zoo in Toronto, Canada
SickKids 22q11 Deletion Syndrome Clinic is thrilled to announce the 2022 22q at the Toronto Zoo Day, to be held on Sunday July 17th. The SickKids clinic is co-hosting this event with the University Health Network's Dalglish Clinic for Adults with...