JACK RYAN
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Jack was diagnosed at Age 2 following VSD repair surgery at CHOP. He is now a healthy, happy, very active 11 year old in middle school. Jack’s biggest challenge has been his behaviors in school. After constant struggles with our school district, I think they finally get it. I had Elwyn Institute Genetics Dept. come to Jack’s school for an in-service on Q22 and I saw the lightbulbs going off in everyone’s heads. They finally believe that Jack has no control of his behaviors and needs con stant sensory releases. With this revelation, the school is finally a happy place for Jack.
Latest News
22Quarterly Research Newsletter
Here is the first issue of the 22QUARTERLY--a newsletter about 22q11.2 deletion syndrome. This article was created by Ana Alves Francisco, a cognitive neuroscientist in our community: This article focuses on: updates regarding the prevalence of 22q...
Upcoming Event
The Notre Dame SPARC Project (virtual, open to families nationwide)
Take advantage of this free, virtual mental health resource. This program is open to families anywhere in America, and they will be taking on new families until April of 2022. In order to join, families need to have a typically developing child...