FONTELLA
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My daughter, Fontella was born November 6, 2001 as a healthy little girl. It was not until the next morning, when the nurses relized that she was turning blue that something was wrong. She was diagnosed with DiGeorge Syndrome and required several surgeries: two heart surgeries, currently has a pace maker, blind in one eye, speech issues, and some developmental issues, but overall a blessed little girl. She doesn\’t have many facial features of DiGeorge Syndrome nor do I treat her like something wrongs. Fontella enjoys her life and lives it as any other little girl would. The more difficult your challenge or test in life the more stronger of a person you become.
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Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
A Healthy You & 22q Conference at Nationwide Children's Hospital
Saturday, September 21, 20248am-4:30pmNationwide Children's Hospital presents: A Healthy You and 22q Conference This is an event you won't want to miss!This event is hosted every two years at Nationwide Childrens Hospital to bring together families...