Emma & Jenna
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These are my lovely twins. They were 2 years old when I first saw a genetic doctor at upstate hospital [in New York]. He suggested we get a genetic test because my girls were behind in speech and walking. When we finally got the results, I learned about 22q and started to spread awareness about it. Both my girls just love to be kind and help others. They get ST, PT & OT. I'm very proud of how far they have come so far.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
3rd Annual Run 2.2 for 22q (Virtual Run, Walk, Ride)
Save-the-Date: May 11-19th, 2024Get active-Raise Awareness-Make a DifferenceOur 3rd Annual Virtual Run 2.2 for 22q will kick off on Saturday, May 11 wherever you like to get active. Whether you prefer to run, walk, or ride, this event is an...