Emma & Jenna
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These are my lovely twins. They were 2 years old when I first saw a genetic doctor at upstate hospital [in New York]. He suggested we get a genetic test because my girls were behind in speech and walking. When we finally got the results, I learned about 22q and started to spread awareness about it. Both my girls just love to be kind and help others. They get ST, PT & OT. I'm very proud of how far they have come so far.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
A Healthy You & 22q Conference at Nationwide Children's Hospital
Saturday, September 21, 20248am-4:30pmNationwide Children's Hospital presents: A Healthy You and 22q Conference This is an event you won't want to miss!This event is hosted every two years at Nationwide Childrens Hospital to bring together families...