EMMA GRACE - 6 YEARS OLD
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This is Emma Grace, she was diagnosed with 22q March in 2011 when she was almost 5 years old. Her father and half brother also have 22q. She is now almost 7 and has had nine surgeries. She has a double aortic arch with vascular rings. She has been recently diagnosed with ADD. She is a very happy little girl. She loves to draw, color and build things with her Legos. She has been taking dance since she was 3 years old and loves it. She has tried soccer twice but still loves her dance more. She loves school and is excited to start 2nd grade in the fall.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
3rd Annual Run 2.2 for 22q (Virtual Run, Walk, Ride)
Save-the-Date: May 11-19th, 2024Get active-Raise Awareness-Make a DifferenceOur 3rd Annual Virtual Run 2.2 for 22q will kick off on Saturday, May 11 wherever you like to get active. Whether you prefer to run, walk, or ride, this event is an...