DYLANRetrun to 22q Stories
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Hello we have a son Joseph Dylan Shead, born 05/05/1998. He is now in 8th grade. He was diagnosed with q22 when he was 6-11 days old. He had a congenital heart defect and also clubbed feet. He had open heart surgery when he was 6 days old, he stayed at Children’s Healthcare for 18 days. He came home with cast on his feet, he had serial casting but that did not work for his clubbed feet, so he later had surgery to correct his feet. He is doing great and has had good heart check ups since. When he was first born, we got information overload. When we brought him home from the hospital we left with 5 more doctor appointments. We seemed overwhelmed with information but we got thru. There seem to be alot of testing at the beginning, but he overcame them all and just has the regular heart checkups. He struggles with school, but gets along good. He is small, but still hold his own and has lot of friends. Dylan attends Camp Braveheart for kids with a congenital heart defect, he really enjoys the camp and seeing the same friends year after year.