DESIREE – 13 years old
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Desiree was diagnosed at age four from the FISH test. She had trouble crawling and had Birth to three services. She is a beautiful young teen. She likes video games etc.. Lately we been going through a lot of new diagnosis. So, she currently has DiGeroge Syndrome(22q deletion), ADHD, Autism, Dystonia, Kyphoscolioses, asthma and brittle bones. She is currently receiving ot and waiting on a bone density scan. At age 4 she also endeavored an open heart surgery for an ASD and still has a residual hole and now sounds of a murmur have come back. She reminds me all accomplishments in life are more memorable.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
A Healthy You & 22q Conference at Nationwide Children's Hospital
Saturday, September 21, 20248am-4:30pmNationwide Children's Hospital presents: A Healthy You and 22q Conference This is an event you won't want to miss!This event is hosted every two years at Nationwide Childrens Hospital to bring together families...