DESIREE – 13 years old
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Desiree was diagnosed at age four from the FISH test. She had trouble crawling and had Birth to three services. She is a beautiful young teen. She likes video games etc.. Lately we been going through a lot of new diagnosis. So, she currently has DiGeroge Syndrome(22q deletion), ADHD, Autism, Dystonia, Kyphoscolioses, asthma and brittle bones. She is currently receiving ot and waiting on a bone density scan. At age 4 she also endeavored an open heart surgery for an ASD and still has a residual hole and now sounds of a murmur have come back. She reminds me all accomplishments in life are more memorable.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
3rd Annual Run 2.2 for 22q (Virtual Run, Walk, Ride)
Save-the-Date: May 11-19th, 2024Get active-Raise Awareness-Make a DifferenceOur 3rd Annual Virtual Run 2.2 for 22q will kick off on Saturday, May 11 wherever you like to get active. Whether you prefer to run, walk, or ride, this event is an...