CHRISTIANRetrun to 22q Stories
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I found out Christian had Di George Syndrome when I was 5 months pregnant. The heart doctor said that his heart was so bad that they suggested I should not have him. I felt like that was God’s decision not mine. I had Christian one month early at 3 lbs. 14 oz. and he did ok for a few days with only a feeding tube. Then when he was a few days old his heart stopped and he had to be intubated. They wanted to get him to five pounds before surgery but had to do it before he could gain enough weight. His surgery went well and he started to do better. He had a trach and a g-tube put in. When he was nine months old he finally got to come home. We have had multiple medical problems over the years with his most recent of hypercalcemia. He is a hand full and full of energy. He is smart and loves the computer, but is more like a three year old. He can’t talk but learned to say mom this year. He loves school, the bus, christmas trees, fans grandfather clocks and neon signs. He hates loud noises but has learned to cover his ears. Christian is a very special boy and I would not trade him for the world. My life is dedicated to him and his older sister who was born healthy.