AVA
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Ava was diagnosed with 22q two weeks after birth while still in the hospital recovering from her first open heart surgery. During her first two years of life, we had the calcium issues, keeping it regulated seemed like mission impossible! Ava was diagnosed as "failure to thrive" at about a month of age due to poor eating/weight gain, along with a list that reads like a novel of setbacks and complications. Today, Ava is five, going on six in May, in Kindergarten and thriving! She is in ballet and tap classes, loves playing baseball with her brother, would live outside if you let her, and wants to play soccer this fall. We love our 22 cutie!
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
A Healthy You & 22q Conference at Nationwide Children's Hospital
Saturday, September 21, 20248am-4:30pmNationwide Children's Hospital presents: A Healthy You and 22q Conference This is an event you won't want to miss!This event is hosted every two years at Nationwide Childrens Hospital to bring together families...