AVA
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Ava was diagnosed with 22q two weeks after birth while still in the hospital recovering from her first open heart surgery. During her first two years of life, we had the calcium issues, keeping it regulated seemed like mission impossible! Ava was diagnosed as "failure to thrive" at about a month of age due to poor eating/weight gain, along with a list that reads like a novel of setbacks and complications. Today, Ava is five, going on six in May, in Kindergarten and thriving! She is in ballet and tap classes, loves playing baseball with her brother, would live outside if you let her, and wants to play soccer this fall. We love our 22 cutie!
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Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
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22q Talent Show: Be Part of our Virtual Audience
You’re Invited: 22q Virtual Talent Show LIVE! Let’s Shine Together: Watch Our 22q Stars Perform! Join Us LIVE to Celebrate 22q Talent & AwarenessGet ready for an inspiring night that will make you smile, cheer, and feel proud to be part of this...