ASHER XAVIER
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Hello, my son was diagnose with 22q, he is a year old, he was born 23 weeks gestational,he weighed 1 Lb. 4 oz. This syndrome is very new to us and we would love to receive more information and assistance in becoming more knowledge about it and who we can see to assist living in the ny area.Asher loves music and his favorite song is \"home\" by Daughtry.I made a video,dedicating to him and the people that supported us and the babies that past away in the NICU ,While we were there ,love to share it.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
22q Parent & Caregiver Education Day at Seattle Children's Hospital
Calling all families in the Seattle and surrounding area to attend an upcoming education day organized for parents and caregivers in our 22q community.We hope to help support and promote this event that is being organized by the team at Seattle...