ASHER XAVIER
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Hello, my son was diagnose with 22q, he is a year old, he was born 23 weeks gestational,he weighed 1 Lb. 4 oz. This syndrome is very new to us and we would love to receive more information and assistance in becoming more knowledge about it and who we can see to assist living in the ny area.Asher loves music and his favorite song is \"home\" by Daughtry.I made a video,dedicating to him and the people that supported us and the babies that past away in the NICU ,While we were there ,love to share it.
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Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
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Free Virtual Webinar: Expert Strategies for Securing Your Loved One's Future
Do you often worry about your loved one with 22q and who/what/how they will be best supported when you are no longer around to care for them? 22q Family is partnering with CaringTide for a free educational webinar.Sharing helpful resources and tools...