ANDREWRetrun to 22q Stories
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I had a very easy pregnancy. All ultrasounds and prenatal checkups showed a healthy baby boy. My labor wasn’t too bad and on November 24, 2009, Andrew was born at 7 lbs, 7 oz, 21 inches long. Andrew had some issues while we were still in the hospital. He was choking on the breast milk he was getting, but sometimes not until an hour after he had eaten. He ended up in the NICU for 2 nights to be monitored, but the choking spells didn’t happen again, so we were sent home with our beautiful baby boy. The first month home was great. We celebrated the holidays with our families and Andrew was doing great. However in January, we were told to take Andrew in for a skull ultrasound and xray to check for craniosynostosis. This gave us quite a scare, but both tests showed no signs of craniosynostosis. Later that month, Andrew started vomiting every time he ate (he was formula fed at this point). He wasn’t gaining weight, which was worrying the pediatrician as well as us. We were going in for weight checks every week. This on top of the possible craniosynostosis and delays hitting milestones led to several blood tests; one of which was a high level chromosome test. All of the tests came back normal. Shortly after, Andrew had gotten quite sick with a virus, so he was admitted to the hospital. While we were there, a full failure to thrive work up was completed. Ultimately, he was diagnosed with 22Q. We were devastated by the news, but feel quite fortunate that all of his tests have come back normal. Andrew is in physical therapy twice a week to help build up his strength. We’re not sure what the future holds, but he truly is a blessing. He has taught us so much and has really showed us what it means to love someone unconditionally. I am so glad he was diagnosed early. We have an amazing support system and great doctors. Andrew has brought so much joy to our lives and I know he will continue to do so for many, many years.