AMELIA
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Amelia was born wih tetrology of fallot due to the 22q. Her repair was done at 3 months of age has been a success so far. Amelia recently tested out of Early Childhood Intervention after showing that she is on target in learning and development. She is truly are little miracle girl. Through testing, we found that her sister — now 3 — and myself have the 22q deletion. However, the deletion has manifested itself differently in all situations. Looking back growing up, I can now explain a lot of the problems I had (constantly sick, ear infections, speech problems) because of the 22q. My hope for the girls is that even though they have 22q, accomplishing their dreams will not be limited because of the 22q but inspite of it.
Latest News
22Quarterly- March 2022 Volume 2 Issue 1
Check-out the recent issue of 22Quarterly- A newsletter about 22q11.2 Deletion Syndrome.Ana Alves Francisco, cognitive neuroscientist and science communicator dives into three new topics and how they affect our 22q community.In this newsletter she...
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2023 Calendar of Webinars
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