AMELIA
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Amelia was born wih tetrology of fallot due to the 22q. Her repair was done at 3 months of age has been a success so far. Amelia recently tested out of Early Childhood Intervention after showing that she is on target in learning and development. She is truly are little miracle girl. Through testing, we found that her sister — now 3 — and myself have the 22q deletion. However, the deletion has manifested itself differently in all situations. Looking back growing up, I can now explain a lot of the problems I had (constantly sick, ear infections, speech problems) because of the 22q. My hope for the girls is that even though they have 22q, accomplishing their dreams will not be limited because of the 22q but inspite of it.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
4th Annual Virtual 2.2 for 22q Run/Walk/Ride
Our 4th Annual Virtual Run/Walk/Ride for 22q is happening this June and registration will be opening up soon! Want to be better about raising awareness but don't know where to start? Participating in this virtual event will help you get active,...