AIDAN - 8 YEARS OLD
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Aidan was born in November of 2004. Doctors at UCSD and Rady Children's first thought he had lung issues because his oxygen was so low, but he was diagnosed at 10 days old with "DiGeorge Syndrome", which led to his trunchus arteriosus diagnosis. His heart is now fully repaired, but he has low t-cells, low weight, scoliosis and some social-emotional and delays/ADHD.
Aidan is an excellent student who loves his San Diego beaches, Hot Wheels, Angry Birds and penguins. He is thriving with the love of his big brother Connor, dad Drew (who is a school based occupational therapist) and his artist/advocate/mom Emily. He recently celebrated his happy healthy heart with a trip up to the Observatory on Mauna Kea in Hawaii!
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
Special Education Advocacy Training: Virtual
Do you have a child or student with 22q11.2 deletion syndrome? Do you want to gain insight into how these students learn best and identify stregnths and weaknesses that come with this diagnosis? We invite you to become an expert with us! Starting...