Take a moment to "like" the 22qAwarenessDays page on Facebook.

Early last week we received an email from 22q Mom, Raj Hemus. Raj was seeking help from all 22q/VCFS&DiGeorge organizations, experts and community members. Her idea was to expand upon the inevitable awareness from upcoming 22q At The Zoo events, by coordinating an online effort to drive online awareness of 22q11.2 Deletion Syndrome for 22 consecutive days.

We gladly accepted the challenge and hope that anyone reading this will too!

Message From 22q Mom, Raj Hemus:

"#22qAwarenessDays is a campaign to share awareness of the genetic condition known as 22q11.2 Deletion Syndrome across the world. 22q is the second most common genetic variation after Downs Syndrome.

Our daughter was diagnosed with the condition shortly after she had heart surgery as a newborn. Ten years on, few people have even heard of 22q let alone know what it is. It affects 1 individual in every 1800.

So please watch out for 22 days of fb posts, tweets starting on the 27th April. Many 22q support groups in the UK, Ireland, Spain, Australia and the USA are supporting this campaign but it is your support that matters. Every like or share will mean that the name 22q is shared through your news feed. Please get involved and remember to tweet, like and share to help spread awareness.

This is something very close to my heart...the idea came from frustration...but it is for Jasmin, for every child and adult like her. And for every undiagnosed individual waiting for a medical professional to recognize the condition and for the correct medical, emotional and educational support to be provided."

                                                                                                                                                                              -Raj Hemus