Chromosome 22 Central (C22C)
Our group offers basic information on the main chromosome 22 disorders, but mostly we are about connecting and learning from each other. Even our get-togethers (I hesitate to call them conferences) are informal and family style. No workshops, just good talk among friends. You'd be amazed what parents can learn from each other. We have a wealth of information between us all.
Chromosome 22 Central is a parent run support organization. We started in 1997 with just a handful of families who had children with what is now known as Emanuel Syndrome, and now we support over 1000 families in all corners of the world, who have many different chromosome 22 disorders. When we started out, the Internet was in its infancy, and we connected mainly by email lists. With social networking today, it is so easy to go on-line and instantly find supportive families who can help you.
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