SAWYERRetrun to 22q Stories
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On May 12, 2009 at 1:02 am, Sawyer arrived by c-section to the NICU team in the OR. They did not think there would be anything wrong, but was present for his birth since I had polyhydramnios and was considered a high risk pregnancy. Within his first minutes of life, he had trouble crying and they could only get a small cry from him. An hour after birth in the recovery room he turned completely purple and was rushed to NICU and placed on cpap. Within 4 days he was transferred to the Hospital for Sick Children in Toronto, where 5 major cardiac defects were discovered. He underwent open heart surgery at 7 days old to repair an interrupted aortic arch, VSD, and other anomolies. During the surgery they noted he was missing his thymus gland, and at that point 22q11.2 was diagnosed, and later confirmed with a FISH test. Sawyer first year of life has been a rough one and about 7 months has been spent in the hospital. At 6 weeks old Sawyer was trached, and at 3 months old he recieved a g-tube which was later advanced to a GJ. Some of the things Sawyer is affected by include ; seizure disorder, subderal hematoma, absent thymus, CHD, immune disorder, hypocalcemia, hypoparathyroidism, chronic lung disease, GERD, chronic aspiration penumonia, tracheal malasia, right vocal cord paralysis, developmental delays. He is a bright and beautiful baby, he is always happy and smiling no matter how sick he is. He gets stronger month by month and our admissions are becoming less frequent. I am so proud of all that he has come through!