NOAH
Retrun to 22q StoriesYou are here
Noah had 22q since birth. He was in NICU when he was born with a hole in his throat. We had to get him a g tube and tie his stomach becuse of reflex issues. We just found out that he has enlarged adriods and mild hearing lost. He is non-verbel and has speech and OT and PT in school. His picture was taken at Make A Wish convoy.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
3rd Annual Run 2.2 for 22q (Virtual Run, Walk, Ride)
Save-the-Date: May 11-19th, 2024Get active-Raise Awareness-Make a DifferenceOur 3rd Annual Virtual Run 2.2 for 22q will kick off on Saturday, May 11 wherever you like to get active. Whether you prefer to run, walk, or ride, this event is an...