TAYLORRetrun to 22q Stories
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Our daughter was misdiagnosed and had cardiac arrest at a week’s age.
She was in the hospital for the first two months of her life and in and out of the hospital up to the age of 18. When we rushed her to the emergency room at a week old they administered a interastio iv into her growth plate in her leg… it saved her life but forever damaged her leg.
Taylor has had three heart surgeries and seven leg surgeries. She was diagnosed with 22q11 and we have visited Children’s Hospital of Philadelphia.Taylor is now 18 and is moderate delayed. My daughter is very orally sensitive and has not eaten anything by mouth in three years. With all that she has gone through, my wife and i know that she truly is a blessing and thank God on how she has touched our lives.