MAEVE
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Maeve is our youngest child, and was diagnosed with 22q.13 (Phelan McDermid Syndrome) when she was 2. She is a happy, high energy bundle of joy who loves to run around, play with her older siblings, and make every day count. While Maeve has fairly significant developmental delays and little speech, she is highly social and is able to bond with people through her smile and her warmth. She makes an impact on everyone she meets, and she has made our lives richer in every possible way.
Latest News
An Interview with R.S. Hibbard, Author of "Just Jen: Living With Invisible Differences"
“I want a kindness revolution!” This was the emotional response Just Jen author Rachel Hibbard gave me when I asked her what she wanted her readers to take away from her new book. Hibbard, a wife and mother of three children, was inspired to...
Upcoming Event
Reebok Ragnar Chicago - Annual 22q Family Meet-Up and Fundraiser
#WeRun22q is a team of runners dedicated to raising awareness for 22q11.2 deletion syndrome. They are dedicated also to raising funds for our foundation and keeping our educational programs free of charge to families. Last year, they ran through...