JOEY – 2 YEARS OLD
Retrun to 22q StoriesYou are here
Joey was born in the summer of 2011. We didn't know there were complications until a few hours after his birth. He was soon diagnosed with Tetralogy of Fallot and a few weeks later with 22q11.2 deletion syndrome. Joey needed open heart surgery at 2 months old. After surgery, we found out that Joey has a blood disorder where his platelets are too large and that he has just one functioning kidney.
At two years old, Joey is the typical toddler: learning how to yell, hug, throw and be independent! He loves to dance, play on his 'laptop' and spend time outdoors. He
is considered non-verbal because he says no words, but he can (and does) make a lot of noise and is learning some sign language at home and in his therapies.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
3rd Annual Run 2.2 for 22q (Virtual Run, Walk, Ride)
Save-the-Date: May 11-19th, 2024Get active-Raise Awareness-Make a DifferenceOur 3rd Annual Virtual Run 2.2 for 22q will kick off on Saturday, May 11 wherever you like to get active. Whether you prefer to run, walk, or ride, this event is an...