JACK RYAN
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Jack was diagnosed at Age 2 following VSD repair surgery at CHOP. He is now a healthy, happy, very active 11 year old in middle school. Jack’s biggest challenge has been his behaviors in school. After constant struggles with our school district, I think they finally get it. I had Elwyn Institute Genetics Dept. come to Jack’s school for an in-service on Q22 and I saw the lightbulbs going off in everyone’s heads. They finally believe that Jack has no control of his behaviors and needs con stant sensory releases. With this revelation, the school is finally a happy place for Jack.
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Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
3rd Annual Run 2.2 for 22q (Virtual Run, Walk, Ride)
Save-the-Date: May 11-19th, 2024Get active-Raise Awareness-Make a DifferenceOur 3rd Annual Virtual Run 2.2 for 22q will kick off on Saturday, May 11 wherever you like to get active. Whether you prefer to run, walk, or ride, this event is an...