IAN
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Ian is 9 years old and was diagnosed with Microduplication 22q11.21 December 23, 2010. He was the third in our family to be diagnosed. His younger sister has it also, and his father has it, which was never known until after our daughter was diagnosed. The medical issues Ian has endured from birth now have an answer as to why. This does not change him, does not stop him, he pushes every single day. He’s an amazing little boy.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
3rd Annual Run 2.2 for 22q (Virtual Run, Walk, Ride)
Save-the-Date: May 11-19th, 2024Get active-Raise Awareness-Make a DifferenceOur 3rd Annual Virtual Run 2.2 for 22q will kick off on Saturday, May 11 wherever you like to get active. Whether you prefer to run, walk, or ride, this event is an...