ASHER XAVIER
Retrun to 22q StoriesYou are here
Hello, my son was diagnose with 22q, he is a year old, he was born 23 weeks gestational,he weighed 1 Lb. 4 oz. This syndrome is very new to us and we would love to receive more information and assistance in becoming more knowledge about it and who we can see to assist living in the ny area.Asher loves music and his favorite song is \"home\" by Daughtry.I made a video,dedicating to him and the people that supported us and the babies that past away in the NICU ,While we were there ,love to share it.
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
3rd Annual Run 2.2 for 22q (Virtual Run, Walk, Ride)
Save-the-Date: May 11-19th, 2024Get active-Raise Awareness-Make a DifferenceOur 3rd Annual Virtual Run 2.2 for 22q will kick off on Saturday, May 11 wherever you like to get active. Whether you prefer to run, walk, or ride, this event is an...